Patient decision support tools are also known as decision tools, or decision aids. They are designed to assist people to make decisions for their healthcare or quality of life, when there is no clear choice between treatment options, or between choosing a treatment and doing nothing.
Decision support tools are useful for people who are having difficulty deciding whether to go ahead with a treatment option (or not); or choosing between one or more treatments. Unlike factsheets, decision tools prompt the user to become informed about their choices, consider the pros and cons of each option, and think about what is important to them before they make their decision. By the end of the decision tool, users should be able to think more clearly, and make an informed choice.
The questions in each section are designed to help you understand and think about the information you have read, and how you feel about each option. Knowing what is important to you, and when it is important can help you plan your services with the MND team.
The website will be regularly updated to ensure the content is current and reliable. Additional decision support tools will be added as they become needed; for example, when people with MND or health professionals advise us about decisions that are difficult to make.
The decision support tools on this website were developed in collaboration with people living with MND, their family carers, representatives of MND NSW and MND Australia, health professionals, researchers and decision tool developers. Each tool was developed in collaboration with subject matter experts to ensure accuracy and relevance of the content. The tools were also evaluated by people living with MND who gave their thoughts on the content and usability of the tools.
The project was privately funded. The scope for this website was initially developed as part of the MND Victoria Research Grant 2015 (MNDRIA GIA 1525)
The content of each decision tool is based on current research evidence, and are updated as new evidence becomes available. Additionally, the format of the decision tools is based on the International Patient Decision Aid Standards criteria. (http://ipdas.ohri.ca/)